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RESOURCES
RESOURCES
Low Protein Food List for PKU by Virginia Schuett
US Dept. of Agriculture (USDA)- the USDA database provides Standard References for the nutrients (including phe) of thousands of foods.
Some Favorite Cook Books:
Perfect Vegetables by the Editors of Cook’s Illustrated Magazine
Vegetarian Cooking for Everyone by Deborah Madison
The Voluptuous Vegan and The Healthy Hedonist by Myra Kornfeld
The Modern Vegetarian Kitchen and Fresh Food Fast by Peter Berley
General Information on PKU:
Phenylketonuria: What is it? great intro into the basics of PKU
National Organization for Rare Disorders (NORD)
Patient Power Living with PKU provides a series of online programs with various experts in the field
Texas Department of Health State Services
Canadian PKU and Allied Disorders Inc a great site with up to date research information
New England Consortium of Metabolic Programs
New England Connection for PKU and Allied Disorders
Mid-Atlantic Connection for PKU and Allied Disorders
E.S.PKU - European Society for Phenylketonuria and Allied Disorders
The PKU Tree - An Australian Website developed by parents of children with PKU
For Social Networking and Support:
The PKU List-Serv - over 1500 members. To join, send an e-mail to listserv@listserv.cc.emory.edu. Type: subscribe pku-support-l and your full name in the text and you are ready to join the group.
PKU.com - Information on PKU and an active discussion board where you can connect with others with PKU.
If we are forgetting any, please drop us an e-mail and we will add to the list!
